Today, I look and feel like a frazzled mess. For the past couple of weeks, I have been dealing with some headaches, hearing loss, and dizziness, along with some other issues. I have been frustrated with not feeling well, trying to figure out if I just grin and bear it, or at what point I should see if something is actually wrong. I am learning, however, that stress tends to cause a lot of problems.
Wednesday, October 14, 2020
When Nothing Goes Right...
Monday, July 27, 2020
Being Judged
2 Corinthians 12:9 ESV
9 But he said to me, (A)“My grace is sufficient for you, for (B)my power is made perfect in weakness.” Therefore I will boast all the more gladly of my weaknesses, so that (C)the power of Christ may rest upon me.
There are so many effects of hydrocephalus that affect me every day, that nobody ever sees. Many of these affect every area of my life, and I have to make moment by moment conscious efforts to push past them.
When I feel I am not good enough, He says "My grace is enough."
When I feel I am not strong enough, He says "I will be your strength." (Isaiah 41:10; Exodus 15:2)
When I feel alone and abandoned, He says "I will never leave you." (Deuteronomy 31:8; Hebrews 13:5)
When I feel I am unable to go on, He says "I am able" (2 Timothy 1:12)
I can do this with His help, but it will take time. If anything, all of this has given me an extreme empathy for those with disabilities that are not obvious to others.
I am learning how to give myself grace as I heal from 7 (yes, SEVEN) major surgeries since April, take care of my home and 3 children, and try to work my hair accessories business. I am blessed and thankful that I have help with the kids, but the other tasks take time to learn how to juggle all over again.
I will not only survive, but with His help, I will THRIVE!
For I am sure that neither death nor life, nor angels nor rulers, nor things present nor things to come, nor powers, nor height nor depth, nor anything else in all creation, will be able to separate us from the love of God in Christ Jesus our Lord.
Romans 8:38-39 ESV
Thursday, July 16, 2020
Impatient With Healing
Tuesday, July 14, 2020
I'm Bustin' Out of Here!
Monday, July 13, 2020
Relief
“I can do everything through him who gives me strength.”
Sunday, July 12, 2020
So Many Feelings...
Saturday, July 11, 2020
I Cried Tonight
Getting Real
Friday, July 10, 2020
Feeling Better, News of the Next Step
Thursday, July 09, 2020
Round and Round and Round We Go...
Tuesday, July 07, 2020
Reduced Pain
Monday, July 06, 2020
Slow Healing
Thursday, July 02, 2020
If We Are The Body...
Wednesday, July 01, 2020
A Difficult Time
Tuesday, June 30, 2020
Pain With No Answers
Monday, June 29, 2020
Good Morning!
Friday, June 26, 2020
Sleepless Nights
Wednesday, June 24, 2020
Two Weeks is Too Soon?
Tuesday, June 23, 2020
Back to Business
This morning, I braided my own hair for the first time since coming home from the hospital.
Sunday, June 21, 2020
My Faith & Hope
Mental Healing
Thursday, June 18, 2020
Going Home, Maybe?
Wednesday, June 17, 2020
17th Shunt-related Surgery
Scripture for Healing
Tuesday, June 16, 2020
My Hydrocephalus Story, Updated (6/16/2020)... Including Social Effects
I have had hydrocephalus since just after I was born. In my first year, I had 9 shunt surgeries. One of those surgeries was to treat an infection. While they were dealing with the infection, pressure built up and caused eye problems, so I also had a few eye surgeries in that first year.
Hydrocephalus and the process of treating it in that first year could have caused so many problems: I could have been blind, deaf, or even vegetative. By the grace of God, I only deal with mild learning disabilities, memory issues (which is the worst in the couple of years after a revision), and slow motor skills, which includes speech. We had no idea how long that 9th shunt would last. As a child, I had a handful of eye muscle surgeries, but my shunt kept working.
As a child, because of the slow speech & struggles with academics, I ended up with some social struggles. I was bullied because I was different. I was called names that I will not repeat here. Adults excused the bullying: "I was the new kid," "boys will be boys," "suck it up. You're too sensitive," "to have a friend, you have to be a friend." I felt like i just wasn't good enough and never would be.
I had to wait until my 10 year reunion to hear that people admired me for accepting everyone & not being in a clique. I wasn't in a clique because I wasn't accepted. I accepted everyone because I knew what it felt like to not be accepted. People came to me about struggles, & I helped them, even if they were one of the people who were unkind to me. They told me I was easy to talk to about anything, but that didn't change how I was treated outside these one-on-one interactions.
As an adult, I have had one more eye surgery & 7 more shunt-related surgeries, the most recent few being April 12th of this year (Easter Sunday), then 3 this past week. I have one more scheduled for tomorrow. Each shunt failure has been a little easier to recognize, for the most part.
The past 4 surgeries have been a little different, because the cause for the failure was different. The one at Easter was from a clog, but they couldn't see what caused the clog. That surgery was a "flush & reconnect." Jun 8th, I went into the ER for something completely unrelated, but that completely unrelated thing became the cause for another clog & shunt failure. An ovarian cyst had grown to a point that it was painful to stand up of move. I went in for the pain from that cyst, & when it ruptured, it clogged the shunt tubing. So, on the 8th, they tried the "flush & reconnect" that had worked 2 months ago. 24 hours later, symptoms were worse, so the system was removed, & an external shunt was placed. But part of the tubing broke off, so that led to general surgery going in to take out tubing on Friday. Now, I'm waiting for them to be able to switch it back to an internal system (scheduled for tomorrow, with the possibility of being moved up to today).
As a general rule, each surgery has required a longer recovery time than the previous. I am thankful that I am getting better though. I think the hardest part for me is the non-physical effects. The brain is the control center for everything else, so pressure on the brain, & the effects of the surgery itself affect pretty much every aspect of my life: mental, emotional, & physical.
This past week, a few nurses have noticed something different about me from all their other patients: Joy. They commented that I am always smiling, even after these major surgeries. Even after having 3 major surgeries in one week, & a 4th one on the schedule. I am thankful that this is what they see. I am thankful that they have started asking how I am still smiling through all of this. I am thankful to know that I have an opportunity to be a light. God doesn't promise us that we won't go through storms in this life, but He does promise that we don't have to go through them alone. He walks through the storms of this life with me.
One thing that has been different about the last few surgeries is that I have not had to cut all my hair off to avoid painful hair ties, clips, & pins touching or pulling on my scalp. I can put my hair up to keep the weight from pulling on my head, & pull it back in hairstyles that cover the incision without causing extra pain. This past week, nurses have enjoyed coming in to brush & braid my hair, & I have enjoyed the company.
#BlowingBubblesWearingBaubles #Hydro #hydrocephalus #HydroWarrior
Jeremiah 29:11
For I know the plans I have for you says the Lord. Plans to prosper you and not to harm you. Plans to give you a hope and a future.
Roman's 8:28
And we know that all things work together for good to those who love Him, to those who are called according to His purpose.
Hebrews 13:5-6
And let your conversation be without covetousness, for He himself has said "I will never leave you, nor forsake you.
So we may boldly say "the Lord is my helper. I will not fear; What can man do to me?"
